“Adding a year to my age is a testimony. 25years ago I started living with a grave illness called myasthenia gravis. This is a total weakness in all the muscles in the body. Limbs, digestive, respiratory etc.Every day is a fight for victory, two hours fairly normal life and other hours is a battle to stay alive.During this battle hours in each day, I might be having breathing problem, swallowing is a difficulty (even my saliva), talking with pains double vision not to mention absolute weakness of the limbs. This situation made me lose everything ranging from a good job, husband, children and myself.
God opened a window of education to me though, I had degrees that a super strong person will not bother about. I had a job with a private school, stronger people there wants to be me.My family are a great blessing ranging from making me work hard irrespective of the week flesh (that is a little tasking if you know), some of them God made my financial anchor, some physically helpful, my mums little grandchild becoming a son anyone will hope for.
My victory didn’t end at that, God raised people in my work place to always help me, students became the children I longed for, some send gifts during birthdays, celebration, and constantly ask after me. The owner of my place of work is just wonderful woman.I shouldn’t forget to add that in all my pains another family accepted me to work with them whenever I can. God bless them.
As if God has not blessed me enough, He raised faithful friends I can call on in times of need.I’m the very best of me and when challenges come my way I overcome.
Being alive today, is a testimony.Happy birthday to me.
I love God😍and thanks to everyone that has added usefully to my life”
The above was written by a fellow myasthenic. Her name was Zenny Momoh,shewas a warrior who kept fighting until the very end. She wrote this a few weeks prior to her death (3 weeks to be exact); one could say it seemed she knew what was about to happen. From this write up, you could have a little insight into her thought process and the kind of mind-set she had. You can see that even though life gave her lemons (MG), she made lemonade; even though life threw her curved balls, she hit them right out of the park. I believe she lived her life to the fullest in spite of MG.
MG made our paths cross and brought us together, and during the short time I knew her, she was always positive. I don’t think I ever heard her complain about having MG. She always had a positive outlook; even when she was ill and having a flare during the last days of her life, she didn’t let on (to me though) how bad it really was. I see strength in her throughout the time I knew her.
As we mourn her, I also celebrate her life. And I choose to take a cue from the legacy she left behind: Live life to the fullest. Life is too short to keep on complaining and dwelling on what MG has taken from you; pause and look at the things that MG has actually given you (however little they may be). And above all, let your life and your time on this earth be an inspiration to others.
Thank you Zenny. We will miss you dearly. Rest in Peace!
#RIP
#weareMG
#MGsupport
#rarediseases
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