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I know how it feels to be given an “almost-death” sentence. Yes, I know exactly what I said. I said it this way because that is exactly how it feels when you are given a diagnosis of a chronic illness without a known cure. When I got my diagnosis, it came with an initial sigh of relief (because I finally knew everything I had been through was not just in …

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The first time I was ever asked this question was three years ago during an interview. I didn’t give an answer back then, and to be honest, I never gave it a thought again until a few weeks ago when the question popped up again during a conversation. Apparently, a few people, including friends, had been wondering if I still had a sex life even with Myasthenia Gravis. Some already …

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Written by Candace Shewchuk   I was diagnosed in May 2007. My right eyelid started drooping, and I thought nothing of it. A few days later, the drooping was not going away so I decided to see my doctor, who immediately advised that I go to the nearest emergency room. The drooping of my right eye got to the point where I really started to look like a stroke patient. …

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Written By Comfort Yaa Solomon Life brings about a lot of challenges and problems that make us want to give up, but the grace of God who strengthens us helps us to overcome it. I am most thankful for this opportunity to share my experience about my diagnosis of Myasthenia Gravis. My name is Comfort Yaa Solomon, a 20-year-old student of Ahantaman Senior High School. Five (5) years ago, while …

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“Adding a year to my age is a testimony. 25years ago I started living with a grave illness called myasthenia gravis. This is a total weakness in all the muscles in the body. Limbs, digestive, respiratory etc.Every day is a fight for victory, two hours fairly normal life and other hours is a battle to stay alive.During this battle hours in each day, I might be having breathing problem, swallowing is a difficulty …

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You know that feeling you get when you have been vindicated …… Anyone who is living with a chronic disease understands what I mean. For years, we experience things that are unexplainable, yet so very real to us but the world doesn’t believe us. I believe it hurts most when the doctors who are supposed to give you help or answers don’t even believe you. Ever since my awareness about …

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We have all heard this saying so often, “You don’t know what you have until you lose it”. Most of us commonly attribute it to relationships, but my personal experience with the unpredictable Myasthenia Gravis (MG) has opened my eyes to other scenarios in which this saying is applicable. Until I had a Myasthenic Crisis, I did not fully grasp the importance of swallowing saliva – a task so simple …

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I have chosen to see Myasthenia Gravis (MG) as a bouquet of roses. In this sense, I look at the fact that a rose has thorns but it also has the beautiful flower portion that everyone loves.   red roses and narcissus www.fanpop.com   Some of you might wonder why I say this about this terrible neuromuscular disease. Well, sometime last year, June 2017 to be precise, I listened to …

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As a child, i knew that invisible meant “to be unseen”. A few days ago, as i pondered on this word along with the interaction I have had with a few fellow MGers,  I realised that Myasthenia gravis fits this description. Hence, it is known as the invisible disease. Its unique, or not unique presentation as the case may be, makes it difficult for a diagnosis to be made. Most of …

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A few weeks ago, I was watching one of Priscilla Shirer’s videos (the war room lady) and she shared a story about stopping at a red light, then turning around to sort out her boys in the back seat. Unfortunately, while she was doing that, she saw, in the corner of her eye, the light change from red to green and back to red again. She had missed the green …

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Inspired by the book – “Who moved my Cheese?” by Spencer Johnson, M.D, foreword by Kenneth Blanchard, Ph.D   We all struggle with change every day of our lives, whether it is regarding our health or our relationships. Unfortunately for us, change is the one constant in life; so, how do we respond when it happens? Do we readily accept it and move on? Or do we resist it completely? …

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Inspired by the heart of the author podcast   “How many things do we wish we would do that are more eternally significant that we don’t because we think we have time? Vickie Petz Henderson   Let me just prepare you from the onset, you will read or hear me talk about Vickie Petz Henderson a lot because she is a big inspiration to me. I first heard about her …

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While listening to “The Heart of The Author” podcast by Vickie Petz Henderson and Jasa Babb, I heard something that seemed weird but was also strengthening in the strangest of ways.   “What if it takes more faith not to be healed? What if that leads more people into His kingdom and that brings Him more glory? Then is it not worth it?”               …

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There are times we wonder why we go through challenges. “Do I deserve this? What did I do to bring this on myself? Why is this happening to me? These are a few variations to some of the questions that fill our minds. Unfortunately, I don’t have a satisfactory answer for you. However, have you ever paused to look at it in a different way? What if everything we go through …

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“Dare to be a Daniel  Dare to stand alone Dare to have a purpose firm and Dare to make it known”   This was part of my secondary school anthem. Back then, we just sang along but never really listened to the words we sang; now, so many years after secondary school, the song makes perfect sense to me. Daniel didn’t try to be like everyone else, rather, he chose to …

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Living in the flesh i.e. doing things in our own effort = Frustration Living in the Spirit i.e. obeying, trusting and depending on God = Joy unspeakable Picture this: you wake up in the morning but you cannot get out of bed. You try to move your arm but it just won’t budge, so you lay there helpless, hoping and praying for strength to move so you are not …

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“A professor was preparing for class and decided to take an orange with him. He began to talk to a bright young man in front and asked him, “If I squeeze this orange, what will I get?” He looked at the professor and answered, “Juice, of course!” The professor said, “Don’t you think I could squeeze apple juice from the orange?” Laughing, he said “No.” “What about grapefruit juice?” He said, …

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I believe that we each have a purpose here on earth. While on my journey, I lost myself and I got stuck. I had a lot of questions but no answers. I didn’t know how to approach God about it, so every time I sat/knelt down to pray I didn’t know what to say. Whenever I opened my bible to read, I had no idea where to start so I …

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Have you ever been in a situation where your expectations were not met? Maybe you worked on a project and you gave it your all but things didn’t work out as expected. How did you feel afterwards? Or better still, did you get some bad news? Did you lose a loved one? Or maybe you were diagnosed with a disease with no known cure? What kind of thoughts filled your …

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I recognized the existence of autoimmune disease when I was diagnosed of Myasthenia gravis in year 2010. I was devastated because I had been managing a deformity from Poliomyelitis since I was eleven (11) months old. Prior to the diagnosis, I lived a very active life and exercise was one thing that made me happy apart from reading novels. The problem all started in my university days; I experienced ptosis that …

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My name is Barbara, a 29-year-old wife and mother of two. I was diagnosed with lupus two years ago. Lupus is an autoimmune condition that affects any organ in the body. In my case, it affects my joints and muscles. I had heard of this disease before but had never thought of it as life threatening until I had my own experience. I lived a perfectly normal life until I …

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I am Nwaokolo Chiedozie, from Kwale, Delta State in Nigeria. I am an Industrial Engineer who was working with a Power generating firm until myasthenia struck. I was also undergoing a Master’s degree program in Mechanical Engineering, full of vigor, enthusiasm and ambition. In February 2015, I had a strange eye defect. I made all necessary enquiries about it and was told by my friends then to try eye cleansing …

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I am a warrior who has been living with an auto immune disease since 2014. It hasn’t been easy for me these past years, the pain and weakness I go through is nothing compared to the awful words from people just because they do not know exactly what I am going through. I have been living with Scleroderma – an autoimmune disease that causes hardening and tightening of the skin …

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www.clipartpanda.com “Why me? What did I do to deserve this? I haven’t wronged anyone, so why did this have to happen to me?” OR “What is the essence of living any longer? I have been on treatment for so long but I haven’t seen any improvement, rather, I seem to be getting worse. Maybe I should just give up because I am so tired.” These are some of the …

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We all have dreams, hopes and aspirations. We all have goals we want to achieve, however sometimes things don’t always work out the way we plan. Just recently, I stumbled upon a beautiful abstract painting which was done by a friend living with a chronic disease. She wrote something equally beautiful and inspiring – Photo/Painting by Vino Illesinghe “Floating dreams. I painted this of all the great things I can …

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www.mindmapinspiration.com Have you ever tried reading through a mirror? That doesn’t make sense right? Can you imagine how difficult it would be to read through a mirror or how long it would take you to read if all the letters were turned around or looked like mirror reflections of themselves. This is an everyday occurrence for a person living with dyslexia. So what is Dyslexia? It is a common …

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“My name is Benjamin Odagbon and I was born on 6th August 1981. As a child, I had a minor disability which wasn’t limiting; however, when I turned 17 years old, I started experiencing pain in my legs which was associated with difficulty climbing stairs and sometimes difficulty walking. I was diagnosed with Limb girdle muscular dystrophy – a condition that causes deterioration of the muscles. As a result of …

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www.acesshowbiz.com Anyone who has watched this movie knows that it talks about zeus a god who had a son named hercules. Hercules was part man and part god. There have been different movies made based on this story but looking at the one made in 2014, hercules was told of his true identity. He asked where his father zeus was when bad things happened to him and those he …

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www.coachjcblog.com How would you feel if one day you woke up and everyone and every item you saw was double, i.e. you see two figures of everything around you? Can you imagine going through life this way? This is the life of a person living with Myasthenia Gravis. Now imagine you were a student, either secondary (high) school or university (college), and every time you picked up a book to …

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Anyone who has ever been through a challenge can attest to the fact that we have a lot of questions on our minds. We even go as far as vocalizing these questions. Questions like “why me?”, “why now?”, “what did I do?” . . . . and the likes. www.itsmyfootprint.com During my journey, I had a lot of questions. I cried a lot but somewhere along the way, I had an …

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www.giphy.com Anyone who has watched the TV series “Friends” would remember when Ross asked the question above. His reason for asking that question was because liquid soap and lotion had poured in his travelling bag and soiled all his clothes. Laugh Out Loud! It was a serious problem for him but that is just a TV show, in reality I believe we ask the same question for reasons that …

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www.123rf.com Have you ever gotten to that point where you ask yourself “Who am I now? How did I get to this point?” If you are really honest with yourself, most of us have asked ourselves one or both of these questions at some point in our lives. I believe this happens when we experience a big change; some of these changes include marriage & childbirth, a period of …

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“Every writer has an inspiration. I found mine.” (Richard Castle) While watching a trailer of one of the episodes of the series “Castle”, I heard Richard Castle make the above statement to Beckett, and it got me thinking – “what is my inspiration?” It took me a few days to ponder on and I believe I have come up with the answer. I don’t believe I have just one inspiration …

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www.huffingtonpost.com Living with a chronic condition is unexplainable. Those of us affected usually have a lot of questions because we are trying to understand why this had to happen to us; we also try to find coping mechanisms, all the while hoping and praying for a cure. I am a survivor living with Myasthenia Gravis (MG), and lately I have been opportuned to meet a few people who are …

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make-up by log cosmetics.  www.logcosmetics.com I have always said life is an OXYMORON – it is usually bittersweet. In my case, it was sweet-bitter because the sweet aspect came before the bitter aspect. Three years ago, the joy that came with being a mother for the very first time was however short-lived in my life. Barely a few days after this joyous moment, I started experiencing strange symptoms. I …

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