Living with a chronic condition is unexplainable. Those of us affected usually have a lot of questions because we are trying to understand why this had to happen to us; we also try to find coping mechanisms, all the while hoping and praying for a cure.
I am a survivor living with Myasthenia Gravis (MG), and lately I have been opportuned to meet a few people who are also living with one rare disease or the other – warriors in their own way.
What keeps us going? This is where hope comes in. Personally, I have not yet found a “train” better than hope to keep me going. In addition to hope, the thought of my daughter has given me the strength to keep fighting instead of giving in to the depression associated with this kind of life.
I had been a pessimist for the better part of my life even though I told myself I was being realistic; however this experience has taught me to think positively and stay that way. It has not been an easy task but I discovered it was a necessary one.
This is to remind all warriors out there that you are not alone, never stop holding on to hope. And to my fellow “snowflake warriors” – hang in there, together we can stop traffic, together we can make a difference!
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